Resources
Downloadable resources are available to support your role in fibrotic ILD patient care.
Download our broad range of resources to support your role in fibrotic ILD patient care, including patient education booklets and other useful materials that you can share with patients.
Appointment planner
An appointment planner to help your patients keep track of their medical appointments.
Broaching difficult subjects – The challenge of breaking bad news[1]
Professor Walter Baile introduces the challenges involved in breaking bad news and what we can learn from experiences in oncology.
Broaching difficult subjects – The SPIKES model in a real-world scenario[1]
Words do matter. Professor Walter Baile describes a real-world experience of how a compassionate and honest conversation made a difference.
Broaching difficult subjects – The SPIKES model in pulmonary fibrosis[1]
Delivering a diagnosis with compassion can make all the difference. See why oncology professor Walter Baile believes the SPIKES model is relevant to pulmonary fibrosis
Howard’s story
Howard shares his positive experiences of pulmonary rehabilitation – as well as his love of being by the sea.
HP infographic
An infographic to help patients learn about their hypersensitivity pneumonitis (HP).
IPF infographic
An infographic to help patients learn about their idiopathic pulmonary fibrosis (IPF).
Jean’s story
Jean explains how mindfulness really helps her deal with her pulmonary fibrosis and maintain a positive outlook.
Living with pulmonary fibrosis eBook
An eBook providing useful information to support patients living with pulmonary fibrosis.
Making the most of appointments with your doctor
An informative booklet providing some simple tips to help patients prepare for their doctor appointments, so they can feel more confident about having a conversation.
Medication reminder chart
A reminder chart to help your patients manage their treatment regimens.
Multi-medication chart
A medication chart to help your patients keep a record of their current and previous medications to provide accurate information to other healthcare professionals.
Progress chart
A chart to help your patients plan their next steps and track their success.
Pulmonary fibrosis consultation planner
A consultation planner to help your patients prepare for their appointments with questions to ask their doctor or nurse.
Pulmonary fibrosis pocketDoktor guide
A quick guide to help your patients learn about pulmonary fibrosis.
RA-ILD infographic
An infographic to help patients learn about their rheumatoid arthritis-associated interstitial lung disease (RA-ILD).
Simple physical exercises
A series of videos demonstrating simple exercises that patients can try at home.
SSc-ILD infographic
An infographic to help patients learn about their systemic sclerosis-associated interstitial lung disease (SSc-ILD).
Symptom tracker
A simple tracker to help your patients monitor and track their symptoms.
The SPIKES model Chapter 1 – The SPIKES model[1]
An overview of each step of the SPIKES communication model.
The SPIKES model Chapter 2 – SPIKES: Setting[1]
Setting up the conversation in the right way to help you and your patients feel at ease.
The SPIKES model Chapter 3 – SPIKES: Perception[1]
How to determine what the patient understands about the situation in order to tailor the conversation.
The SPIKES model Chapter 4 – SPIKES: Invitation[1]
Identifying how your patient would like to receive the news.
The SPIKES model Chapter 5 – SPIKES: Knowledge[1]
Find out how to give the facts and information to your patient in a way that works for them.
The SPIKES model Chapter 6 – SPIKES: Emotions[1]
Discover how to uncover a patients' emotions with an empathetic response.
The SPIKES model Chapter 7 – SPIKES: Strategy and Summary[1]
How making a plan for the future can help your patients feel informed and prepared.
The SPIKES model Chapter 8 – What do patients want from their doctors?[1]
Professor Walter Baile reveals how to secure an open and honest therapeutic partnership with your patients.
Using the SPIKES model in pulmonary fibrosis[1]
A quick guide to using the SPIKES model in your practice to support difficult conversations about diagnosis, disease progression, and prognosis.
- Wijsenbeek MS, Bonella F, Orsatti L, et al. Communicating with patients with idiopathic pulmonary fibrosis: can we do it better? ERJ Open Res. 2022;7:00422–2021.
Resources for patients
